I am a 46 year old woman living in Texas with my husband and dogs. My kids (3 of them) are grown and moved out and starting families of their own now. So I am now a grandmother of 4...wooohooooo!!
I am the first known RSD Coach™. Not sure what that is? Well, I have been diagnosed with Reflex Sympathetic Dystrophy since 2003 in my left ankle, then 2006 it went throughout my entire body, then in 2007 was no longer alone. It is now in the company of Fibromyalgia, Osteoporosis, and the onset of MS. I know, a lot on my plate. But I chose to make something positive out of something horrible and become the first known
RSD Coach™.
I also do a weekly radio show where we talk with people with all types of chronic illnesses causing pain, along with having lots of fun.
I am in the process of writing a book about my experience on coping with RSD and the horrible pain that accompanies it. Along with how to have A Winning Life with RSD.
Well, that's about all I can think of for now to so I will bring this to a close, but if I think of anything else later, I will be sure to add it. =)
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I admire your tenacity. It's contagious and I know that I will benefit from your spirit of enthusiasm. Being a nurse, you see a tremendous amount of pain and you can't help but develop empathy for people.
Personally, in my trials, I got tired of feeling helpless and feeling victimized. I think though, that is just part of the grieving process. Grieving does not always have to be associated with death. When losing the freedom of good health and normal body function, you learn to compromise. I have litteraly found it to be mind over matter. I can choose to wallow over my adversities or I can pick myself up by my boot straps, give myself a swift kick in the behind and move on.
People have admiration for people like you Coach Marla, and you have my admiration. I beleive you are a person that doesn't gloat on sympathy but would rather hear, look what she has done with her life.
I too am writing a book, besides children's books on the death of my best friend, my husband. I want people to know that life does go on. For a while, it came to a hault for me. I managed to crawl out of the depths of my despair and began to feel human again. Now I work with people who are grieving just like I did and still do. But at least, I try to give them useful tools on how to develop healthy coping techniques.
Although nursing is my career at this moment, I do hope that writing will be able to replace part of it. Once a nurse, always a nurse and I will always be that "Nurse Nancy" with the blue cape and red wagon, putting the bandaids on all the hurts in my heart. For those who are younger then the "baby boomers," Nurse Nancy was part of the Golden Book Series.
Back to the RSD, you have had it a long time. I had it once, but it did go dormant then when I re-injured myself, it came back full blast. Even the skightest paper cut can excite RSD.
Thanks for sharing about your struggles and your triumphs.
Coach Marla, your one of the only people that spell my name correctly on the first go-round, thank you.:-)
You're welcome for the welcome. Yes, I've written and published a few paperback and ebooks. Perhaps you could post your questions on the forums where I and others will have an opportunity to respond. This is where you position yourself to borrow from the wisdom and experience of the entire community, it's an holistic(sp) approach to increasing your knowledge base.
Welcome and good to meet you. The forums have some good discussions, I look forward to reading your post there. Self publishing your own book gives tips on marketing, promoting and publishing books.
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Do stop by when you have a moment to check out our free book marketing tool - BookBuzzr. (www.bookbuzzr.com)
BookBuzzr is a page-flipping application that is more suited for marketing books online. BookBuzzr comes with the built-in ability to share your book-extract on over 60 social networking and bookmarking sites such as Facebook, Orkut, MySpace, Digg, Delicious etc.
We'd love it if you'd take a look at our tool and share your thoughts.
Cheers
Freya [at] bookbuzzr [dot] com
PS - Sorry for this message if you already use BookBuzzr, but please help us tell others and spread the benefit!
Have a nice day.
I admire your tenacity. It's contagious and I know that I will benefit from your spirit of enthusiasm. Being a nurse, you see a tremendous amount of pain and you can't help but develop empathy for people.
Personally, in my trials, I got tired of feeling helpless and feeling victimized. I think though, that is just part of the grieving process. Grieving does not always have to be associated with death. When losing the freedom of good health and normal body function, you learn to compromise. I have litteraly found it to be mind over matter. I can choose to wallow over my adversities or I can pick myself up by my boot straps, give myself a swift kick in the behind and move on.
People have admiration for people like you Coach Marla, and you have my admiration. I beleive you are a person that doesn't gloat on sympathy but would rather hear, look what she has done with her life.
I too am writing a book, besides children's books on the death of my best friend, my husband. I want people to know that life does go on. For a while, it came to a hault for me. I managed to crawl out of the depths of my despair and began to feel human again. Now I work with people who are grieving just like I did and still do. But at least, I try to give them useful tools on how to develop healthy coping techniques.
Although nursing is my career at this moment, I do hope that writing will be able to replace part of it. Once a nurse, always a nurse and I will always be that "Nurse Nancy" with the blue cape and red wagon, putting the bandaids on all the hurts in my heart. For those who are younger then the "baby boomers," Nurse Nancy was part of the Golden Book Series.
Back to the RSD, you have had it a long time. I had it once, but it did go dormant then when I re-injured myself, it came back full blast. Even the skightest paper cut can excite RSD.
Thanks for sharing about your struggles and your triumphs.
Don
You're welcome for the welcome. Yes, I've written and published a few paperback and ebooks. Perhaps you could post your questions on the forums where I and others will have an opportunity to respond. This is where you position yourself to borrow from the wisdom and experience of the entire community, it's an holistic(sp) approach to increasing your knowledge base.
The forums have some good discussions, I look forward to reading your post there. Self publishing your own book gives tips on marketing, promoting and publishing books.